Guest blog: An ageing population of people living with HIV – helping the care sector to respond

 Our latest guest blog is from Eleanor Briggs, Director of Policy and Campaigns at the National AIDS Trust. She explains how the care system could do more for older people living with HIV.

William had a bad experience when he was discharged from hospital to a care home. When he asked for a bath he was often ignored, or left to wait until everybody else had been washed. He was given separate disposable cutlery and when his neighbours came to visit, they were told not to let their child go into his room.  Why? Because William is living with HIV.

This is not a story from the 1980s when we didn’t understand the virus and effective treatment was not available. This was last year. If staff had been aware that there is no risk of transmission from everyday care activities, he would have had a very different experience. His awful treatment was based on ignorance and fear. Continue reading “Guest blog: An ageing population of people living with HIV – helping the care sector to respond”

Guest Blog: World AIDS Day – HIV and older people

This blog was contributed by Rachel Albone, HIV Policy Officer, from our sister organisation HelpAge International.

Thursday 1 December is World AIDS Day and this year the HIV community has much to celebrate: we have seen declines in new infections; new and ambitious commitments and targets for the HIV response set by world leaders at the High Level Meeting in June; and a continued increase in the numbers of people accessing ART, and as a result, a decline in the number of AIDS-related deaths.

For HelpAge and the older people living with and affected by HIV we are working with, this World AIDS Day we are contemplating a mixture of frustrations and opportunities.

For us, the bottom line is that still too little is being done to address the impact of HIV on older people, their complete absence in the 2011 Political Declaration from the High Level Meeting being a case in point.

Yet we do have an opportunity. The epidemic is undoubtedly ageing and increasingly we do have some data available that proves this.

We now know that around 13% of people living with HIV in sub-Saharan Africa are in their 50s and above, and current estimates show by 2015 over 50% of people with the virus in theUSwill be in this age group.

The UNAIDS World AIDS Day Report 2011 and the new data on the reduction of AIDS related deaths, also provides a clear indication that prevalence among older people will continue to rise as more people are living longer with HIV.

So in the face of this evidence, what are we doing?

To mark World AIDS Day this year, HelpAge is holding a conference ‘HIV and ageing in Africa’ on the 2 and 3 December inEthiopia. We are very excited to be hosting this event in partnership with UNAIDS, the WHO and theUniversity ofSydney.

UNAIDS and WHO’s involvement in the conference is a clear indication that they recognise the importance of this issue and the need to respond. We are looking forward to working with them (and the University of Sydney, School of Public Health which is doing great research on HIV and ageing) both at the conference, and crucially afterwards, to jointly ensure HIV and ageing is better addressed in the HIV response in future.

At the conference we will be addressing the needs of both older people living with HIV and older carers. We will have a session presenting the data we have on prevalence among older people and an exciting presentation of new projections of prevalence among older people in the coming decades based on likely ART scale up rates.

We will be talking about how HIV affects older people’s health and will have a frank conversation about older people’s sexual behaviour.

We will also be looking at what is currently being done to address older people’s needs. We have some good examples of programmes and research at the community level that are focusing on a range of issues, from HIV education, to emotional support for grandparents caring for their grandchildren, and the benefits of pensions for older carers and their families.

And most importantly older people living with and affected by HIV will be at the conference themselves, sharing their experiences and telling us what HIV means to them and their families.

For HelpAge this conference provides a great opportunity to bring together colleagues from Governments, UN agencies, academia and civil society to share their knowledge and plan for the future. We hope that together, we can begin to develop a response that will meet the needs of older people living with HIV.

For us, the key issues for immediate action are:

  1. To address the data challenge and ensure Governments and the UN system are collecting, analysing and reporting data on HIV for those aged 50 and above
  2. To highlight the lack of understanding about the health implications of living in older age with HIV and the need for more research into this issue if we are to be able to support older people properly in the future
  3. To recognise the contribution older people are making through the care they are providing to family and community members and to ensure they are better supported
  4. To take full advantage of the opportunity the conference provides to develop a joint way forward so we can work with older people living with and affected by HIV to ensure their needs are met and they can finally come out of the shadows of the HIV response

Read our feature about older people and HIV

Find out more about our international work with our partner HelpAge International