Guest blog: Time is now for people powered dementia care

This guest post was contributed by Ewan King, director of business development and delivery, at the Social Care Institute for Excellence (SCIE).

“I am doing something worthwhile. I am earning my bread again”. This is what Brian, who has dementia, said about how his life has changed for the better as a result of directly shaping the care that he and others receive. He is not alone in benefiting from being involved in decisions about care.

In England, it is estimated that around 676,000 people have dementia. This number is expected to grow over the coming years. And this comes at a time when there are severe cuts in budgets, particularly in social care. So what can public services do when more traditional solutions – such as recruiting more staff or expanding services – are not open to them? Whilst at the same time we know that people with dementia – and their carers – need person-centred holistic care and support, including high quality social care. Continue reading “Guest blog: Time is now for people powered dementia care”

Guest Blog: Using online reviews to choose care homes

This guest blog was contributed by Lisa Trigg, Research Officer at LSE Health and Social Care, at the London School of Economics and Political Science.

Last year, an Office of Fair Trading report highlighted the lack of information support for older people looking for care homes, and the recent Delivering Dignity report draws attention to the opportunity to help them with providing resident feedback on the internet. Last week’s White Paper, “Caring for our future: reforming care and support”, also included an announcement that the Department of Health will work with organisations to develop comparison websites for social care.

The Social Care Institute for Excellence (SCIE) recently identified over 30 websites dedicated to various listings and information on social care providers. Many of them provide links to the Care Quality Commission’s inspection reports, and some new sites, for example Good Care Guide, enable service users and their carers to post feedback on care homes. This function will also be available on SCIE’s own site Find Me Good Care, which launches later this summer. In addition, the Government recently awarded £160,000 to Patient Opinion, a publisher of online patient reviews on health care, to include reviews on social care providers.

TripAdvisor was set up in 2000 and contains over 60 million reviews on travel-related services such as hotels and restaurants. The idea of searching for feedback on the quality of products and services is increasingly common in service and goods industries. A website where people seeking care could go and access a range of opinions on care providers seems like a strikingly obvious service to provide.

However, Patient Opinion recently encountered a number of challenges when they introduced a pilot with two care home providers. A major problem arose due to the difficulty of protecting the anonymity of users. Care homes have far fewer residents than hotels have guests, so it could be easy for staff to figure out who posted negative reviews of a care home.

It is important for the identity of a frail, vulnerable resident of a care home to be protected to avoid the risk of poor care or even abuse. This also applies to care home staff. Hoteliers and restaurant owners have been subject to a range of personal accusations on TripAdvisor, ranging from racism to alleged assault and theft.

Patient Opinion also highlights the difficulties of motivating people to post reviews. Ratings websites like TripAdvisor are based on generating the ‘wisdom of crowds’. For care homes, this would mean that if enough people posted reviews, the average review would eventually give an accurate reflection of what the care home is really like.

However, many residents may not be able to post their own feedback, whether this is because of a lack of access or a lack of experience with using the internet, or because of the high proportion of residents who are living with dementia. For relatives and carers meanwhile, there is the concern about the knock-on effects if they post a poor review.

From a more practical perspective, residents are likely to live in residential care for many months or even years. For hotels and restaurants, customers will stay for as little as one night or one meal. This means there are enough customers experiencing the service to generate significantly more reviews. Even then, the number of reviews can be in stark contrast to the number of users. One study worked out that for the most popular Harry Potter book, only one in 1,300 purchasers posted a review on Amazon.

Despite all this, it’s important to recognise that people will increasingly look to the internet for information on care home quality. What people really want is to be able to find out what it’s really like to live in a particular care home.

The opportunity then is to harness resources and technology to manage the information process. For example, how can we capture larger amounts of feedback from residents, relatives and employees? And then how do we combine this with the views of organisations such as the CQC, local authorities or Age UK and present it to the public in a careful and sensitive way? Or alternatively, how can we use technology to put people in touch with each other when what they really need is to talk to someone like themselves who has experience of the home?

The focus needs to be on identifying the support and information people really need, and then developing creative ways of providing it.

Watch a video blog about the challenges of delivering care in care homes 

Read our latest social care reform briefing 

Think global, act … personal: a sustainable future for social care

Catherine Max is an independent consultant specialising in sustainable health and social care.  Since 2009, she has led the Social Care Institute for Excellence’s Sustainable Social Care programme, funded by the Department of Health.

The Social Care Institute for Excellence (SCIE) is working with partners in the sector to promote sustainable development in social care.  One question which arose early on in the Sustainable Social Care programme was:  could personalisation stimulate the market for more sustainable care services?  As researchers from the Institute for Sustainability, Health and Environment suggest ‘If several people receiving community meals in the same street choose different providers this could lead to increased environmental impact and transport costs. However, community-based models of personalisation … have great potential to facilitate the development of care and support that is environmentally, economically and socially sustainable.

Last year, SCIE collaborated with Bristol City Council to explore the implications of personalisation for sustainability and test the appetite in the community for more sustainable approaches. We used a sustainable development framework to probe issues spanning housing, transport and the public realm as well as care itself. Our rationale was that this would engender a holistic understanding of needs across the life-course as opposed to a response to a care need at a particular time. Continue reading “Think global, act … personal: a sustainable future for social care”